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1st Annual Virtual One-Day Conference – May 31, 2025

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XLID98 Awareness Day – May 17, 2025

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XLID98 is an ultra-rare neurodevelopmental condition that affects individuals around the world.

It is known by several different names, such as NEXMIF, KIAA2022, KIDLIA and others.

If any of these terms sound familiar, you are in the right place.

You are NOT alone!

Your help can speed current medical research on a treatment.

About XLID98

Who does XLID98 affect?

Child name

Some information about this child - where they live, age, hobbies, etc.

Learn more about <child name>

Santiago

Born 2015, Argentina

Learn more about 
Santiago

Liam

Born 1997, Canada

Learn more about 
Liam

Leah

Born 2006, Canada

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Leah

Rachel

Born 1990, United States

Learn more about 
Rachel

Serenity

Born 2009, United States

Learn more about 
Serenity

Sidney

Born 2008, Canada

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Sidney

Taylor

Born 2010, Canada

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Taylor

Boyd

Born 2013, USA

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Boyd

Jacob

Born 2015, United Kingdom

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Jacob

Floris

Born 2006, The Netherlands

Learn more about 
Floris