XLID98 is an ultra-rare life-long neurodevelopmental condition affecting individuals around the world.

Different terms are sometimes used when talking about the condition, such as NEXMIF, KIAA2022, KIDLIA and others.

If any of these terms sound familiar, you are in the right place.

You are NOT alone!

Your help can speed current medical research on a treatment

About XLID98

Who does XLID98 affect?

Child name

Some information about this child - where they live, age, hobbies, etc.

Learnmore about <child name>

Santiago

Born 2015, Argentina

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Santiago

Liam

Born 1997, Canada

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Liam

Leah

Born 2006, Canada

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Leah

Rachel

Born 1990, United States

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Rachel

Serenity

Born 2009, United States

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Serenity

Sidney

Born 2008, Canada

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Sidney

Taylor

Born 2010, Canada

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Taylor

Boyd

Born 2013, USA

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Boyd

Jacob

Born 2015, United Kingdom

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Jacob

Floris

Born 2006, The Netherlands

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Floris